Preserving the Integrity of Medical-Related Information – How "Informed" is Consent?

  • Mzukisi Niven Njotini University of Limpopo (Turfloop)
Keywords: User, health care, personal information, critical infromation infrustructures

Abstract

Health care services are recognised as a right. These services are available to "everyone" who needs them. This availability ensures that users, that is, persons who receive treatment in a health establishment or who are in need of health services, are able to have access to these services. Generally, health care services should be available without undue financial burden to users. This then means that the government is saddled with an added financial and administrative burden to ensure their availability to users. However, the availability of the services depends on the availability of resources. In cases where resources are diminished, users who may be in need of health care services may be excluded. Furthermore, the availability of access to health care services does not sufficiently guarantee the securing of users’ personal information. Thus, it is enquired what levels of safeguards do health establishments have to secure the personal information of users? Do these security mechanisms allow for the disclosure of personal information to third parties, and how?

Author Biography

Mzukisi Niven Njotini, University of Limpopo (Turfloop)

LLD, LLM (Cum Laude), LLB

References

Literature

Andanda 2005 Dev World Bioeth
Andanda P "Module Two – Informed Consent" 2005 Dev World Bioeth 14-29

Badhwar Worthwhile Life
Badhwar NK Well-Being: Happiness in a Worthwhile Life (Oxford University Press Oxford 2014)

Bennett Regulating Privacy
Bennett CJ Regulating Privacy: Data Protection and Policy in Europe and the United States (Cornell University Press New York 1992)

Chima 2013 BMC Medical Ethics
Chima SC "Evaluating the Quality of Informed Consent and Contemporary Clinical Practices by Medical Doctors in South Africa: An Empirical Study" 2013 BMC Medical Ethics 1-17

Claassen and Verschoor Medical Negligence
Claassen NJB and Verschoor T Medical Negligence in South Africa (Digma Pretoria 1992)

Currie and De Waal Bill of Rights Handbook
Currie I and De Waal J The Bill of Rights Handbook (Juta Cape Town 2016)

Da Veiga and Martins 2015 CLSR
Da Veiga A and Martins N "Information Security Culture and Information Protection Culture: A Validated Assessment Instrument" 2015 CLSR 243-256

Downie and Telfer 1971 Journal of Philosophy
Downie RS and Telfer E "Autonomy" 1971 Journal of Philosophy 293-301

Dworkin "Liberalism"
Dworkin R "Liberalism" in Hampshire S (ed) Public and Private Morality (Cambridge University Press Cambridge 1978) 113-130

Faden, Beauchamp and King Informed Consent
Faden RR, Beauchamp TL and King NM A History and Theory of Informed Consent (Oxford University Press Oxford 1986)

Feinberg Social Philosophy
Feinberg J Rights, Justice, and the Bounds of Liberty: Essays in Social Philosophy (Princeton University Press New Jersey 1980)

Holtzman Privacy Lost
Holtzman DH Privacy Lost: How Technology is Endangering Your Privacy (Jossey-Bass San Francisco 2006)

HPCSA Guidelines, 2008
Health Professions Council of South Africa Guidelines for Good Practice in the Health Care Professions, 2008 (HPCSA Pretoria 2008)

Jackson Medical Law
Jackson E Medical Law: Texts, Cases and Materials (Oxford University Press Oxford 2013)

Rawls 1980 Journal of Philosophy
Rawls J "Construction and Objectivity" 1980 Journal of Philosophy 554-572

Roos 2006 CILSA
Roos A "Core Principles of Data Protection Law" 2006 CILSA 103-130

Slabbert 2009 Obiter
Slabbert M "This is My Kidney, I Can Do what I Want With it – Property Rights and Ownership of Human Organs" 2009 Obiter 499-517

Snyman Criminal Law
Snyman CR Criminal Law (LexisNexis Durban 2008)

Thomas 2007 SALJ
Thomas R "Where to from Castell v De Greef? Lessons from Recent Developments in South Africa and Abroad regarding Consent to Treatment and the Standard of Disclosure" 2007 SALJ 188-215

Tribe American Constitutional Law
Tribe LH American Constitutional Law (Foundation Press New York 2000)

Van Oosten 1995 De Jure
Van Oosten FFW "Castell v De Greef and the Doctrine of Informed Consent: Medical Paternalism Ousted in Favour of Patient Autonomy" 1995 De Jure 164-179

Wolff Anarchism
Wolff RP In Defence of Anarchism (University of California Press Berkeley 1970)

Case law
Afrox Healthcare Bpk v Strydom 2002 4 All SA 125 (SCA)
Castell v De Greef 1994 4 SA 408 (C)
Christian Lawyers Association v Minister of Health (Reproductive Health Alliance as Amicus Curiae) 2005 1 SA 509 (T)
Havasupai Tribe of the Havasupai Reservation v. Arizona Board of Regents Nos 1 CA-CV 07-0454, 1 CA-CV 07-0801 2008
Issacs v Pandie 2012 ZAWCHC 47 (16 May 2012)
Minister of Safety and Security v Xaba 2004 1 SACR 149 (D)
Mitchell v Dixon 1914 AD 519
Moore v Regents of the University of California 51 Cal 3d 120 (1990)
Oldwage v Louwrens 2004 1 All SA 532 (C)
Richter v Estate Hamman 1976 3 SA 408 (C)
Rogers v Whitaker 1993 67 ALJR 47
S v Bailey 1981 4 SA 187 (N)
Stoffberg v Elliot 1923 CPD 148
Van Wyk v Lewis 1924 AD 438

Legislation
Constitution of the Republic of South Africa, 1996
Consumer Protection Act 68 of 2008
Electronic Communications and Transactions Act 25 of 2002
National Health Act 61 of 2003
Promotion of Access to Information Act 2 of 2000
Protection of Personal Information Act 4 of 2013

International instruments

Charter of Fundamental Rights of the European Union (2000)

Internet sources

IoDSA 2009 https://cdn.ymaws.com/www.iodsa.co.za/resource/resmgr/
king_iii/King_Report_on_Governance_fo.pdf
Institute of Directors Southern Africa 2009 King III Report https://cdn.ymaws.com/www.iodsa.co.za/resource/resmgr/king_iii/King_Report_on_Governance_fo.pdf accessed 3 June 2018

ISO 2013 http://mahdi.hashemitabar.com/cms/images/Download/ISO/iso-iec-27002-2013-english.pdf
International Standards Organisation 2013 ISO/IEC 27002 http://mahdi.hashemitabar.com/cms/images/Download/ISO/iso-iec-27002-2013-english.pdf accessed 3 June 2018

OECD 2013 https://www.oecd.org/sti/ieconomy/2013-oecd-privacy-guidelines.pdf
Organisation for Economic Co-Operation and Development 2013 Recommendation of the Council concerning Guidelines Governing the Protection of Privacy and Transborder Flows of Personal Data https://www.oecd.org/sti/ieconomy/2013-oecd-privacy-guidelines.pdf accessed 3 June 2018

Weisbrot 2008 https://www.alrc.gov.au/news-media/2008/media-briefing-technology-neutral-privacy-principles-should-govern-rapidly-developin
Weisbrot D 2008 Technology-Neutral Privacy Principles Should Govern Rapidly Developing ICT https://www.alrc.gov.au/news-media/2008/media-briefing-technology-neutral-privacy-principles-should-govern-rapidly-developin accessed 3 June 2018
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Published
2018-09-07
Section
Articles